Until there's a cure ... there's care

MND Support Services

Supporting people living with MND

 

MND Victoria

  • We are a state-wide community based organisation
  • We were formed in 1981 by a small group of volunteers – people living with MND, family members and others, to promote and provide the best possible support and care for people living with MND
  • Our key focus is to help people to live better for longer by providing support, information, equipment and volunteer services
  • We have over 30 years’ experience working in partnership with clinicians, health professionals, community agencies, palliative care organisations and funding bodies to support people living with MND to get the services they need to live better for longer
  • We advocate on behalf of people with MND and raise awareness of MND within the community and the service system
  • We are a not-for-profit organisation with a dedicated fundraising team

What services do we provide?

MND Victoria provides the following range of services across the state to support people living with MND, their family, carers and health professionals at no cost to the person with MND:

  • MND Advisor Service
  • Support Coordination (NDIS)
  • Equipment
  • Information
  • Groups
  • Volunteers

Information

MND Victoria disseminates information via phone, internet, mail, social media, group sessions and forums ensuring that information is easily accessible regardless of location or ability. MND Victoria provides information on:

  • The disease and its progression
  • Managing the disease
  • Support services
  • Research
  • Grief and loss
  • Other requested topics

Information is current, accurate and tailored to the needs of the requesting person; be they someone with MND, a family carer, friend, health professional, student or a member of the general public. Information sessions are held every six weeks at our Office in Canterbury for newly diagnosed people with MND, their families and friends.

Groups

MND Victoria offers a range of group programs delivered by volunteers and staff to support people with MND and their carers.

Different programs take on a variety of forms and offer participants the opportunity to:

  • Meet and share experience with others in a similar situation
  • Give and receive strategies and tips
  • Join in a facilitated discussion
  • Learn about living well with MND
  • Receive support for loss and grief

     The length and format of groups vary based on the needs of the participants.

Volunteers

Volunteers play an integral role in supporting people living with MND.

The following MND Victoria services are provided by volunteers:

  • Hand and foot massage
  • Life stories
  • Friendly visiting
  • Group facilitation
  • Telephone support

Volunteers continue to underpin all MND Victoria activities through:

  • Administrative support
  • Fundraising
  • Awareness raising
  • Support groups

Many of our volunteers have had personal experience with family members or friends with MND.

All volunteers have undergone appropriate checks and training.

 

People aged under 65 and registered with NDIS received the MND Advisor, Support Coordinator, and Equipment Service as follows:

MND Advisor and Support Coordinator

Our MND Advisors are experienced professionals who are very knowledgeable about MND and link

people living with MND to health and community services. They:

  • Provide personalised information and advice to people living with MND, their family, friends and health professionals.
  • Help people understand the disease and its complexities
  • Maintain regular contact with people living with MND through home visits, phone calls and emails
  • Work in defined geographic areas with expert knowledge of community resources within their area
  • Refer and facilitate access to health and community services and supports
  • Advocate on behalf of people living with MND for timely provision of services and funding
  • Facilitate information sessions for people living with MND and their families and also for health professionals.
  • Advise and assist eligible people with MND to access the NDIS
  • Help with the development of NDIS plans
  • Support people at NDIS planning meetings
  • If appointed as support coordinator, can assist with plan implementation, plan reviews and understanding the NDIS processes.

Equipment

  • MND Victoria has a wide range of disability aids and equipment (assistive technology)

available which assist mobility, independence, comfort and safety, and allow people living with

MND to live at home and access their community for as long as possible.

  • Items from the MND Victoria equipment library need to be prescribed and requested by an allied health professional.

NDIS and Equipment

Option 1: Bundle

The bundle includes the provision of a range of items available from MND Victoria for a period of 12 months.

Payment to MND Victoria is due at the commencement of the 12 month period and will be payable as listed on the NDIS plan at no cost to you.

Delivery, service and repairs (wear and tear and accidental damage only) and retrieval are covered in

this payment.

Generally only one item of each particular piece of equipment, as prescribed, is delivered to the

primary residential address. 

Option 2: Rental fee per individual item

Delivery, service and repairs (wear and tear and accidental damage only) and retrieval are covered.

Rental price of some items is the same for 6 months’ rental or 12 months’ rental.

 

People aged over 65 and registered with My aged care received the MND Advisor and Equipment Service as follows:

MND Advisor Service

Our MND Advisors are experienced professionals who advise on care management and link people

living with MND with health and community services. They:

  • Provide personalised information and advice to people living with MND, their family, friends and health professionals. Help people understand the disease and its complexities
  • Conduct needs assessment
  • Maintain regular contact with people living with MND through home visits, phone calls and emails
  • Work in defined geographic areas with expert knowledge of community resources within their area
  • Understand My Aged Care and refer and facilitate access to health and community services and supports
  • Advocate on behalf of people living with MND for timely provision of services and funding
  • Facilitate information sessions for people living with MND and their families and also for health professionals.

Equipment

  • MND Victoria has a wide range of disability aids and equipment (assistive technology) available which assist mobility, independence, comfort and safety, and allow people living with MND to live at home and access their community for as long as possible.
  • Items from the MND Victoria equipment library need to be prescribed and requested by an allied health professional.
  • People with MND across the NSW border are provided with equipment by MND NSW

 

To apply for Support Services you can:

  • Submit a Client Registration Form found on our website
  • Or contact MND Victoria by phone: (03) 9830 2122 or 1800 806 632 or by email: This email address is being protected from spambots. You need JavaScript enabled to view it.

  

Office address:
265 Canterbury Road Canterbury Vic 3126

Postal address:
PO Box 23 Canterbury Vic 3126

Office hours:
9 am-5 pm, Monday to Friday

 

Connect and join the conversation

www.facebook.com/MNDVic

www.twitter.com/MNDVic

www.instagram.com/mnd_vic

www.linkedin.com/company/mndvic

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