You can find many email lists and online support groups about a range of conditions. Listed below are some that especially focus on MND.
MND Victoria Social Media
Find MND Victoria on Social Media via the following links:
Ozpals (Oz=Australia/NZ, PALS=people with ALS)
A very supportive group of people in Australia and New Zealand affected by MND, either as PALS, or carers and family, plus former carers and several people in associated medical and/or care industries.
Ozpals is great for discussing anything even remotely connected to living with MND with others facing similar issues or those who have been through it. It is part of Yahoo Groups, which is specifically set up for sharing information amongst people with a common interest.
It is strongly recommended that you acquire a Yahoo ID if you don't already have one as that gives you access to search and view all messages posted on Ozpals since its inception in the late 1990s. There is much very valuable information there to be gleaned from past and current members. To subscribe go to https://groups.yahoo.com/neo/groups/ozpals/info
A website for people living with MND (also includes several other diseases in separate areas).
The aim is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases. To make this happen, a platform has been created for collecting and sharing real world, outcome-based patient data. It has also been set up to establish data-sharing partnerships with doctors, pharmaceuticals, medical device companies and non-profits. To go directly to information about ALS/MND or log to Patientslikeme.
ALS Forum – ALS TDI
A free online discussion board hosted by ALS TDI (ALS Therapy Development Institute). The forum is moderated by Dr McCarty. Topics include ALS Research, Living with ALS and ALS Advocacy. To register for the ALS Forum visit: www.als.net/forum
An online, all-volunteer support group for anyone affected by motor neuron disease (MND) or amyotrophic lateral sclerosis (ALS). It is fully moderated and offers help, tips, friendship, care and support. To subscribe go to www.alsforums.com/forum/register.php