Until there's a cure ... there's care

Motor Neurone Disease (MND) is an uncommon disease and often people may not have heard of the condition prior to being diagnosed.

Motor neurone disease (MND) is the name given to a group of diseases in which the nerve cells - neurones - controlling the muscles that enable us to move around, speak, breathe and swallow, fail to work normally. With no nerves to activate them, muscles gradually weaken and waste. The patterns of weakness vary from person to person.

Motor Neurone Disease (MND) is an umbrella term used for a group of diseases that affect the functioning of motor neurones. It is also known in different parts of the world as:

  • Amyotrophic Lateral Sclerosis (ALS), named after the most common type
  • Lou Gehrig’s Disease
  • Maladie de Charcot (Charcot’s disease)

The different types of MND are often categorised as:

  • Amyotrophic Lateral Sclerosis (ALS) - 65% of all cases
  • Progressive Bulbar Palsy (PBP) - 25% of all cases
  • Flail Limb (including the variant Progressive Muscular Atrophy) - 9%  of all cases
  • Primary Lateral Sclerosis - 1%  of all cases

In Victoria approximately 400 people are living with the condition at any given time.

Further information is available on the topics below:

Or view our General MND Information Kit.

MND Victoria regularly runs information sessions for people diagnosed with MND, their families and friends. Find out more about our Information Nights and support through our Group Programs.

 “…someone who knows what you’re going through.” – MND Victoria client

In Victoria a wide range of health and support services are available to help people diagnosed with MND live life. MND Victoria can assist you in accessing the right services for you:

Find out about MND Victoria Support Services and Government support for people with MND and download our Client Application Form (Docx, 37KB).

Every day MND Researchers across the world work together to find cause, cure and treatment for Motor Neurone Disease.