People diagnosed with MND when they are aged under 65 years of age, and their carers, may be eligible for assistance and benefits from the government either through the National Disability Insurance Scheme (NDIS).
Our MND Advisors - Support Coordinators will discuss your eligibility for the NDIS in one of their first meetings with you.
What is the NDIS?
The NDIS has been described as the biggest social reform in Australia since Medicare. It is a no fault insurance scheme designed to recognise the ‘right’ of people to live as ‘ordinary’ a life possible and that support related to disability is an entitlement not a privilege. This ‘right’ however is extended only to people who acquire a disability before they turn 65 years of age. People 65 years and older may be able to access some support through Commonwealth Aged Care programs.
About the NDIS
On 1 July 2016, the NDIS began to roll out across Victoria and was introduced in stages across the rest of the state until 30 June 2019. The scheme is now fully operational.
Accessing the NDIS
To be eligible for the NDIS you need to be:
- an Australian citizen or permanent resident,
- aged under 65 years,
- have a permanent disability that significantly impacts their everyday functioning and participation in social activities and work OR
- a person who the NDIS believes would benefit from early intervention.
What happens when you turn 65?
When you turn 65 you will have a choice of continuing with the NDIS or transferring to the aged care sector for your supports.
This is the word used by the NDIS for individuals who meet the NDIS access criteria and begin to take part in NDIS.
The NDIS Plan is developed by the Local Area Coordinator (LAC) or NDIS Planner. The NDIS LAC or planner will make an initial telephone call to you to establish basic details and gather information to inform the development of your first plan. You or your representative can request a face to face visit to undertake the planning conversation rather than have it conducted over the telephone. You are also able to advise the LAC or planner of the person/s you wish to have with you at the planning conversation. We strongly recommend that you have your MND Advisor present whether the conversation is conducted face to face or via the telephone.
During the planning conversation the planner will work with you and your family to identify your support needs and how you wish to live your life. These supports can be what is needed immediately, but may also include supports that are likely to needed in the foreseeable future. Some supports may address safety issues for you, your family and carers, such as the need for certain types of equipment. With planning comes a budget to purchase the supports and services documented in your plan.
To ensure the plan is appropriate, it is important that you think about and discuss your situation and how you wish to live your life with the relevant people, prior to the planning conversation. These people may be your family and significant others. It is important that it also includes the MND Advisor as she/he, with considerable experience, understands MND, its impact and the importance of planning for the future. We have also developed a resource to assist you with your decision making.
A support provider is a person or an organisation that delivers support to NDIS participants. The participant can choose the agencies or people that they want to deliver the supports documented in the plan.
MND Victoria and the NDIS
MND Victoria is a registered NDIS support provider. We can provide:
- support coordination through our MND Advisor Service and
For further information about the NDIS including access, roll out dates and information packs including videos and maps, please visit the relevant state NDIS page on the NDIS website or phone 1800 800 110.