MND Advisors meet with newly diagnosed people and their families to provide information about the disease, offer advice and support and make an initial assessment of their specific service and support needs. Ongoing support and advice is provided to meet the individual’s changing circumstances.
Each MND Advisor works in a defined area which enables them to develop expert understanding of the services in their region. MND Advisors navigate the service system for people living with MND to ensure that they are linked in to services that will meet their needs. They are assisted in their role by volunteers who follow up with clients as required.
MND Advisors also advocate on behalf of people living with MND and provide information, training and advice to agencies and government departments to ensure that the best possible care and support is available.
MND Advisors are also able to support those eligible for the National Disability Insurance Scheme [the NDIS] to prepare to enter the scheme and guide them through the planning process. People with MND, who have an approved plan with a provision for support coordination, may elect for their MND Advisor to provide support coordination ensuring the continued service of their MND Advisor once they commence as a participant in the NDIS. In addition to their role as an MND Advisor, MND Advisor – Support Coordinators can also assist with ongoing advocacy to the NDIS and provide support to activate and manage your NDIS plan including assistance with establishing appropriate home and community supports as funded by the plan.
The MND Advisor Service is delivered by qualified professionals who have knowledge of MND and extensive experience in the community services sector.