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Living with MND

Living with MND is a collection of advice from carers, patients, former carers and health professionals. It is a distillation of information that is offered as experience which other people living with MND may wish to draw on.

If you would like to talk to someone with expert knowledge on MND, please contact MND Victoria on (03) 9830 2122 or 1800 806 632 or by email on This email address is being protected from spambots. You need JavaScript enabled to view it.

While much of the material is drawn from health professionals, and has been reviewed by health professionals working with people living with MND, this information is not intended as medical advice. The information presented here is of a general nature only. The needs of individuals should be professionally assessed and addressed.  People facing specific issues in relation to MND and its impact on their lives should seek appropriate advice from qualified health professionals.

The information is separated into 10 major aspects of living with MND, each heading providing information and advice in a number of specific areas:

Treatment | Physical Needs | Recreation and Leisure | Emotional Needs | General Health | Personal Care | Eating and Drinking | Home Comfort | Communications | Books