MND Week is celebrated nationally in the first full week of May each year. MND Associations work together during this week to raise awareness of MND to realise the vision of a world free from the impact of MND. It is also a time to acknowledge the MND community and people living with MND today, and to remember those who have died. MND WEEK – what is happening in Victoria? The following events have been planned for MND Week 2009 – please click on the title of the event for more information.A Service of Hope & Remembrance will be conducted for people whose lives have been
touched by MND, and each guest will receive a seedling to take home to be planted and to grow
to symbolise life after MND, and hope for the future.
Members, their families and friends are warmly invited to join in this day’s activity. It would be helpful for seating purposes and catering if we could have some idea of the number of attendees, so an RSVP to the Association would be appreciated.
- Hope & Remembrance service
- Display of “Australia’s March of MND Faces” Banner
- Afternoon tea
- Merchandise table
A half-day seminar focusing on support for people living with motor neurone disease.
Equipment for comfort and enhancing quality of life
Pam Smith, Senior Clinician Physiotherapist, and
Ruth Skene, Chief Occupational Therapist
Calvary Health Care Bethlehem
Ventilation Issues
Sharon Sibenaler & Simon Conti
Outreach Nurses, Victorian Respiratory Support Services
Palliative Care – What is it?
Claudette Chikulin
Banksia Palliative Care Service
Legal Issues for People with MND
Paul Watson
Maurice Blackburn Lawyers
How did they do it?
Janet Haberle
Former Carer
Do you have questions for the experts, please write them down or send them to the Coordinator Information and Research.
For further information on the above events, please contact Inez van Polanen, Coordinator Information and Research
Telephone (03) 9830 2122, Free call 1800 806 632 or email
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MND Week
