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About MND PDF Print E-mail

This page can link you to a range of information about MND.

Some Facts, in the form of frequently asked questions, provides basic information about MND. Some Facts is also available for download in al-'Arabiyyah, Chinese, Croatian, Greek, Hindi, Italian, Polish, Serbian, Spanish, Thai, Turkish and Vietnamese.

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More Facts provides more detail using a series of questions and answers, offering further depth and breadth to the issues raised in Some Facts. In addition, it responds to a number of other questions. 

Treatment provides information on the drug Rilutek, plus more.

Just For Kids is a series of questions and answers for children who have a parent or loved one diagnosed with MND.  It has been designed for use by 8 - 14 year olds, and has some suggestions for activities as well as an explanation of MND and its impact. 

Kennedy's Disease, or X-Linked Spinal and Bulbar Muscular Atrophy, is a genetic form of motor neurone disease.  This page provides some basic information about Kennedy's Disease.

Genetic Testing has become common place for many diseases.  In motor neurone disease, one particular gene has been discovered (SOD1) which causes 20% of familial MND.  This information outlines the pro's and con's of genetic testing and discusses many of the issues that need to be taken into account by people who consider testing. 

Living With MND is a collection of advice from carers, patients, former carers and health professionals. It is a distillation of information that is offered as "experience" which other people living with MND may wish to draw on. The information is separated into seven major aspects of living with MND, each heading providing information and advice in a number of specific areas. 

 
 

MND Health Professional Forum Hobart Tasmania

Hobart, 13 October 2010
Program & Registration